Did it work? For my wife they could not find a Vienna so they just scored the nerve. It seemed to work for a while then came back. They said because she was so young (in her twenties) that the nerve regenerated faster than expected -- less than a year. So then rather than brain surgery again this time they did RF ablatuin. That didn't work and just last month it went bilateral. Keep us posted if you learn anything new. So far her MRI has shown no signs of MS.
Sorry to hear about your wife... With me, because they could only remove the Arachnoid and scrape the nerve, I didn't find any relief and my Bilateral started straight after the MVD & I had to go back onto meds. But I found a few months later that the illness went into remission and I no longer needed the meds. I feel this was a combination of the nerve being scraped and my change in diet to cutting out foods that cause the nerves to be hyper-active. I also have no signs of MS yet... be positive and do everything you can to keep the nerves calm... All the best! Hope to hear from you soon! Jessie
Thanks for all the info on your blog. Is it really nice to read about someone else's experiences with this horrible problem, and not feel so alone.Why is all of your hair shaved after the surgery? Did you choose to do this?
Hi there, you are definitely NOT alone. Glad to hear you find comfort in reading my blog. I will try write more soon. And to answer your question, yes I did choose to have my head shaved, as they had to shave a large area in order to operate, and if I had only had that section taken off it would have looked very strange, only having hair on the left side of my head. So I decided it should grow back evenly and allowed them to just take it all off.Hope you are having some painfree days! Do keep reading and commenting! (:
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