Tuesday, October 5, 2010

1st Solitary Fibrous Tumor Removal March 2009

I had a lump in my right eye for as long as the TN was around… from my first attacks and being diagnosed with TN. I did see an Opthalmologist who looked and said it was just an eye infection and gave me ointment… Even before the MVD my surgeon looked at my eye because it was bulging out so much and asked me to go get another opinion…

I couldn’t get an appointment with the eye specialist that I had researched so I had to see another specialist working with him… he looked at my eye and again said it nothing to worry about… & sent me to the optometrist working in their team… my eyesight on the affected eye was out of focus… as you can imagine if you push your finger against the side of you eye your vision will be affected. I explained for how long this bulge had been there and about my Trigeminal Neuralgia on the same side as the eye bulge. She asked me to bring her the MRI scans of my brain that was taken for the TN, because in these scans the affected eye is very clear. I dropped them off and she then took this to the specialist that I originally wanted to see as he is the best but he was booked months in advance. He had a look at my scans and called me to come in to see him ASAP. He sent me to have scans done of just my eye… this showed that there was a tumor in my eye socket that was growing and causing the bulge.

He suggested we operate to remove the tumor and have it tested to find out more… again I was in the war zone! I consulted my Professor and the surgeon who did my MVD they both said that the tumor removal will not affect the TN and that in no way do they think the tumor grew as a result of the TN. The tumor was removed in March 09’. The pathology report showed that this was a “Solitude Fibrous Tumor” One that keeps growing back and it is important to keep removing it surgically as it is a pre-cancerous tumor and leaving it will only result in it turning cancerous and growing onto the bone of the face and spreading…

The eye was swollen and bloody for a week or so… my dearest angel of a hubby had to clean and dress it daily and insert my ointment. He had to carry me and guide me through the house as trying to open the left eye meant that the right eye would try open as well so it was important to keep both eyes closes… soon it healed! The eye heals super fast! The Surgeon set up a follow up appointment for me in six months to check on in to see if it was growing back or not…

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